Project: Equitable Policies and Services for Rare Disease Patients

Duration: December 2014 – June 2016

Donor: European Union

Partners: National Organization for Rare Diseases of Serbia – NORBS and Institute of molecular genetics and genetic engineering – IMGGE

The objective of the project Equitable Policies and Services for Rare Disease Patientsis to enhance the position and combat discrimination of patients with rare diseases through supporting equitable policies and services for rare diseases patients. The action supports a more equitable health care and social security system.

Main expected results of the action are: in depth assessment of current discriminatory practices; formulation of recommendations for rare disease policies which transpose the European standards in policy and practice; public awareness campaigns; personal counseling services and empowerment for rare disease patients and their families.

Project: Non-discrimination Training for Targeted Local Practitioners in 20 Local Self-Government Units

Duration: December 2014 – June 2015

Donor: Organisation for Security and Cooperation in Europe (OSCE)

Partner: Lawyers Committee for Human Rights (YUCOM)

Non-discrimination Training for Targeted Local Practitioners in 20 Local Self-Government Units” is project implemented in cooperation with Lawyers Committee for Human Rights (YUCOM) with the financial support by the Organisation for Security and Cooperation in Europe (OSCE). The project activites include provision of specialized training on antidiscrimination approaches in healthcare and social care in 20 municipalities throughout Serbia. The trainings are envisaged for Healthcare professionals and social workers and accredited as a part of continuous education for healthcare professionals by revelant national authorities. So far, trainings were held in Pancevo, Novi Sad, Odzaci and Sombor with over 200 participants from health and social care area. For the forthcoming period, trainings are planned in the health institutions of the following local municipalities: Kragujevac, Krusevac, Zvezdara, Knjazevac, Bela Palanka, Smederevo, Kovin, Valjevo, Koceljeva, Zitoradja, Prokuplje, Leksovac, Bojnik, Vranje and Bujanovac.

– “Roma Health Project – Public Health Program”.  Project is financed by the Open Society Foundation and is implemented by the Center for Minority Rights andAssociation of Lawyers for Medical and Health Law of Serbia. -SUPRAM is participating in the implementation of the project through the continuous education in Belgrade, Nis and Novi Sad, with the topic “Quality of Health Care of the Roma Population in Serbia”. Themes of the education are: 1. Right to the highest attainable standard of health care and the status of Roma people, 2. Access to health care and the principle of non-discrimination, 3. Patients’ rights protection with special attention to the Roma population, and 4. Health care of the vulnerable groups – implementation and monitoring of the health policy conduction.

– “Roma Rights to Quality Health Care (Empowering Roma representatives in local self-governments in achieving Roma rights to quality health care” – SUPRAM implements the project together with Centre for Minority Rights, during 2014. Project is financed by the Open Society Foundation.  The objective of the Project is to strengthened active and effective role of Roma representatives in Serbia in accessing their basic human rights. Specific objectives are: 1) Raising Awareness within the society  about the importance of health and social care for Roma and 2) Empowerment and motivation of the representatives of Roma in local self-governments in Serbia to work with and on behalf of Roma in accessing their health rights

“Human Rights and Values in Biomedicine – Democratization of Decision-Making in Health Care and Implementation” is a project of the Institute of Social Sciences, Centre for Legal Research, predominantly performed by the researchers-members of SUPRAM. The subject of research is the relation between human rights and biomedicine from the perspective of relevant international standards and a need for their implementation within the national legal system.